Advocacy and support for all impacted by NF
The Children’s Tumour Foundation (CTF) is a patient advocacy and support service for kids, adults and families impacted by all types of neurofibromatosis, or NF, including NF1, NF2-related schwannomatosis (NF2-SWN) and schwannomatosis (SWN)
What is NF?
Neurofibromatosis (NF) refers to a group of rare and complex genetic conditions that cause tumours to form on nerves throughout the body.
NF can lead to a range of significant health issues such as deafness, blindness, physical differences, bone abnormalities, learning difficulties, itch, chronic pain and even cancer.
Every
days a child is born with NF in Australia
Approximately
of cases have no family history of the condition
More than
people are living with NF in Australia
Moving towards a future free from NF tumours
Those living with NF face significant health issues, struggle to find the right diagnosis, get access to the right treatments, and sometimes face discrimination, stigma or even exclusion. NF is highly variable, unpredictable and progressive, and those living with it will need a lifetime of support.
